It's a hot button for me. I should probably just keep on scrolling' or keep on walking' when the word comes up in conversation or my FB news feed. It is my soapbox. I HATE the word.
It carries a whole lot pain for me. I suffer with its ramifications everyday. EVERY DAY. I have three boys to kiss, train, hug and play with- it should be FOUR. 4.
The mere mention of the word SIDS drops a load on me like carrying a backpack full of bricks. It reminds me of the deep soul sucking pain that has no escape. At the mention of Sids HURT comes swelling to the surface; with loads of GUILT because I should have known something was wrong...; REGRET for not doing Something because I am his mother I should have...; ANGER, God you should have saved us from this terrible fate!; and a massive load of WHAT IF'S? I may not cry or rage when you say it. I may just walk away. But I assure you I've be hit with a wreaking ball.
'Sids' has changed me in ways that I cannot change back. Joel says I lost a part of me; the fun loving completely carefree girl. My innocence is gone; with every happy family event I still feel held back because that there is ONE missing. And all this has occurred because of one Small acronym: SIDS(Sudden Infant Death Syndrome).
If you look at my sons Death Certificate, you do not read "SIDS" anywhere on the page. The cause of death is, "UNKNOWN". IT is not suffocation, it is not heart failure, it is not trauma or cancer or Inner Ear abnormalities, or any other identifiable cause of death.
When groups come out and say, "Back to Sleep" will help reduce your risk of Sids. Or Immunizations help reduce your child's risk of Sids. Or even Breastfeeding, I SCREAM! How can they say there is a connection when they cannot find the cause. They don't know.
The very definition of SIDS is UNKNOWN! The American Academy of Pediatrics defines "SIDS has been defined as “the sudden death of an
infant under 1 year of age that remains unexplained
after a thorough case investigation, including perfor-
mance of a complete autopsy, examination of the
death scene, and review of the clinical history.”17"
Unexplained. As in no explanation as to why the infant died. In suffocation, heart failure, asphyxiation, and Carbon Monoxide poisoning there are clues that direct the Medical Examiner. When no determination can be made the official declaration is UNKNOWN. And with that declaration there is a whole slue of ramifications that will be apart of the families life.
This was brought to the surface because I saw a post about an article about a doctor who, "may have found a cure for SIDS" HERE is his AD to raise money for his hypothesis. He thinks it is an inner ear issue that a simple hearing test can identify. HMMM well how about you don't say.
When I hear, "This doctor may have a cure!" I think, why didn't someone bother to figure this out ten years ago? Oh wait, someone was, and yet they were dead wrong. Babies are still dying for unknown reasons everyday.
In the early 1990's is was because babies slept on their tummies, so the Back To Sleep campaign was born. Nope, didn't solve it, babies continued to die without notice or cause to be found. Now Sids is said to be prevented by a myriad of things. You can't find a solution when you don't know the problem.
Wednesday, April 8, 2015
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